As my son has grown he delights me with all of his unique qualities…. and as a hyperactive child with autisim, his eccentricities are abundant. I love the way his mind works…. and how his room has enough random lighting to brighten the garage door through his window. I love the way he likes to shout at the store about everything we are doing….
“Mommy going potty!!!!!”
It can be embarrassing, but it sure is fun.
Our latest endeavor includes filling for SSI, and IHSS- for those who aren’t familiar with the many acronyms we have as disabled parents; I’m basically declaring his disability so that I can be availible to be his caregiver.
What this means to us is- a long line of invited strangers skulking through our home taking notes on everything that we need to change.
I’m kind of used to it…..
It’s happened for 6 years now….
I wonder if there will be a time when I can be a mother without so much interference from the state. I mean I’ve already given up everything, my personal life, privacy, the right to my own schedule, finishing college, and now it will be my job….
I’m prepared and happy to do these things….
…. but if they demand I remove his lights. … there will be a battle…..
My lovely boy, you can trust me to preserve your happiness. I hope one day I can tell you about all of the things we have accomplished and endured. For now, I’m thankful to be able to be your mom.